Daryn has been spending a lot of time at the doctor's lately. Last we she was supposed to get her harness that corrects her hip dysplasia off (she was wearing it just at night for the last month, because they thought her hips were almost fully corrected). Instead, during the ultrasound, the technician decided they didn't look quite right and so looked at them from a different angle, and released the balls of the socket were, in fact, not were they should be. In order to get a clearer picture, they sent her in for a CT scan ( :( ).
Afterwards, they were able to determine that her hips were not only posterior, but they were also angled inward. So she's back in the harness full-time for anther month. Unfortunately, it's kind of a last-ditch effort. Her doctor thinks that surgery at 6-8 months of age is the most likely scenario at this point :(. We're praying that doesn't have to happen and the harness can fix her hips, but we have faith the Lord will look out for her either way.
Then, she was back at Primary Children's this past Friday for clinic, where she sees all her doctors and the people involved in her care. This includes surgeons, urologists, orthopedics, physical therapists, dieticians, geneticists, neurosurgeons, cardiologists, and more. It was a very busy, but encouraging, morning. Everyone was very pleased with her progress and impressed with her happy demeanor- she was so smiley! The two big things- 1. She has to start physical therapy through Early Intervention because they are concerned she will be delayed with everything going on, and they don't want her to be set back. and 2. It turns out she also has a hole in her heart. Apparently every one is born with a hole in their heart. In most people it closes up at some point, and it usually isn't a big deal if it doesn't. But Daryn's is bigger than normal, and they are concerned it will get bigger. So they may have to do something to close it when she is a couple years older, before it becomes an issue. It's kind of a wait-and-see at this point.
Anyway, you can see this little girl has a lot on her plate. However, she is truly thriving. She has now doubled her birth weight and weighs just over 9.5 lbs. Her appetite is increasing and she is starting to sleep through the night- close to 8 hours on some nights. She is really starting to develop a happy personality. She is so smiley- especially when you take of her harness-, she is learning to blow bubbles, and today she laughed for the first time!
She likes hanging out with her baby buddies.
She can kick those little legs pretty hard- she kicked herself right over!
She brings so much light and joy to our lives. She is so so precious and I can't wait to see who she turns out to be!
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